First Name :   veronica
email address :   veronica22h@yahoo.com
City, Country :   South Houston, TX, USA
Message :   My 11 week old daughter Aryanna has recently been diagnosed with PL. we are just now starting treatment. I have a million questions is there more information on pl?
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First Name :   Li
email address :   lilyliu525@gmail.com
City, Country :   Lanzhou, China
Message :   Hello, many thanks to the nice website, especially when we felt so desperate. My three years old nephew was diagnosed with PIL, and he has already got a lot infusions. I found so many useful information here, and cant wait to tell all my family members.
More space :   Hope to get contact with more families who currently fighting with IL. Thank you for sharing. Have a good time!

First Name :   Claire
email address :   vickers.claire@libero.it
City, Country :   Italy
Message :   Our son aged 7 was completely healthy for his first 7 years (no coughs or respritory problems) until last summer when he caught bacterial pneumonia and went into septic shock. After a gruelling 3 weeks in hospital he recovered and appeared to have overcom
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First Name :   Victoria
email address :   JackNRoseDawson@aol.com
City, Country :   Columbus, Ohio USA
Message :   My son Russell is 6 and in Kindergarten. He was diagnosed with IL at 10/12 months old at Nationwide Childrens Hospital in Columbus Ohio,USA. He has been on Plasma Infusions once a week since then and doing very well. His plasma is called Hizentra. He sees
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First Name :   Rebecca Stewart
email address :   r.stewart1989@hotmail.co.uk
City, Country :   england, surrey
Message :   Hi, My son suffers with primary intestinal lymphangiectasia. i have found your site really useful as no where else really explains things. Also the food menus are really good. My son is only 6 months so only just coming to terms with how rare and hard i
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First Name :   bev
email address :   bevg1234@hotmail.co.uk
City, Country :   uk
Message :   I have just met someone and wish to know as much as possible about the condition in order to not only understand but to help in any way I can
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First Name :   dylan
email address :   psychoticteddybear@gmail.com
City, Country :   simi valley,california
Message :   hey mom, i think the website is great :D
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First Name :   Dorothy
email address :   hotdot911@aol.com
City, Country :   Greenville, SC, USA
Message :   I love my Betsy. When she was in the hospital this week, our bible study group of moms missed her dearly. (She always serves us our refreshments)!!
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First Name :   heather
email address :   heatherm.waterston@btopenworld.com
City, Country :   Glasgow, Scotland
Message :   Thank you for this site, my daughter has Lymphedema in both her legs, she has had a cough for months now. Our GP gave her an asthma inhaler without doing any tests. Shes only 15 months you have provided me with info and questions i can now ask, before med
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First Name :   Emily
email address :   EmilyKellogg24@yahoo.com
City, Country :   Coopersville, MI
Message :   My son was diagnosed with PIL when he was 3 months old, after a month long hospital stay. He has since had a G-tube placed, which was initally used for tube feeding of Portagen at night. He is now off the Portagen. We still use his G-tube to give him iron
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